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In August 2014 there was a Q&A Session. Here is that newsletter for download. Q&A August 2014
Rosie Callcott, Lymphoedema Specialist Nurse was our speaker for the evening. Rosie is based at the Robert Horrell Macmillan Cancer Centre on the City Hospital site, where she has the dual role of leading the Day Centre Team and providing the Lymphoedema service.
There is a Charities Conference on the 7th June at the Kingsgate Centre for anyone who is interested in attending. Details can be provided by Denise
Tombola prizes for the Strawberry Tea were passed on to Val who reminded everyone that she will be selling tickets at the next meeting £5.00 each.
We have looked into the possibility of a Walk, (for those that want to collect sponsorship that is OK to do it personally) followed by a food/social sit down and chat. As the end of June seems busy we can possibly book a walk and food on any of the following days: Saturday or Sunday June 11th & 12th or July 9th, 10th, 16th or 17th.
Please let us know by the next meeting if ANY of you are interested in doing this as there is a lot of organisation involved and give us your preferred dates, we felt Saturdays were more favoured at the last Meeting!
We had an open meeting in April to give us the chance to organise our activities for 2016. These were:-
Strawberry Tea 18th June: Tickets £5.00 Val asked if we could bring items for Tombola prizes to the May meeting. Also, any garden chairs, tables and sun shades would be handy. There will also be plants for sale to help boost funds.
Future Speakers: Rosie Callcott is attending the May meeting to tell us about lymphedema and its effects. Dobbi had been in contact with a GP willing to talk to us about nutritional supplement for later in the year. As more information is needed about current endocrine treatments, a request that a speaker from the Oncology department was made. Croccus Group – we have been invited to attend their AGM at the Woodman with a view to holding a joint meeting.
AOB: A suggestion was made to raise group funds by a sponsored walk around Ferry Meadows. Wellbeing project - Gill no longer attends meetings but update awaiting. Lisa had visited a prosthesis tour in Dublin and had been amazed at the quality of the new products available. Carole asked if anyone would like some shampoo and conditioner for wigs.
Considering it was a miserable and cold night we had a good turnout for a March meeting and we were pleased to welcome Stephanie Cassidy from Peterborough Job Centre Plus who joined us to speak about benefits both in and out of work. Steph outlined the four main benefits which would apply to us;
The first was Employment and Support Allowance (ESA) for people who are unable to work due to illness or disability. There are 2 types of ESA, and depending on circumstances you may be entitled to one or both of them:
· Contribution-based ESA - you can get this if you've paid enough National Insurance contributions. It's taxable.
· Income-related ESA - you can get this if you have no income or a low income. You don't have to have paid National Insurance contributions and it isn't taxable.
Both require a medical certificate and assessment. Read More...
Val informed us that the Strawberry Tea Event would be held on 18th of June not the 25th as previously stated.
Denise welcomed everyone to the groups first meeting in 2016. Collectively we all had vast insights and experiences into the cancer journey which was happily shared to support and inform our new members.
Prosthesis: The experience of using prosthesis after mastectomy became a hot topic for discussion.
Therapeutic Break: Rosemary wanted to promote the ‘Casting for Recovery’ activity which she, Jayshree, Jenny & Val took part in last year. The experience of being looked after and pampered had been very therapeutic.
Moving On Course: Rachel said she had referred to the ‘Moving On’ course being run at the Robert Horrell Centre due to the stress of working in Oncology. The course had been highly recommended in the past by Margaret who had found it of considerable benefit.
Summer Strawberries: Val was asked if she would be organising another Strawberry Tea fundraising event this year. A provisional date was agreed for 25th June.
AOB: Deborah asked if anyone had tried the ‘cold cap’ to stop hair loss. Val asked if anyone knew of an accountant willing to audit the group’s accounts. Denise reminded the group that we would be meeting with CROCUS sometime this year to share ideas and experiences. CROCUS is the head and neck cancer group who meet at the Woodman pub up the road
Retirement: We started the last meeting of the year with the announcement that Jenny Nottingham, who has been responsible for managing distribution of the PBCSG Newsletter is retiring from the NHS after 28 years. We would all like to thank Jenny for her help in supporting PBCSG and promoting our existence.
Living Well with Cancer: Needless to say as it was our Christmas party there was no formal speaker but Jane and Rosemary had been to the Hospitals ‘Living Well with Cancer’ event and thought it had been very good.
Casting for Recovery Trip: Photographs of the brilliant ‘Casting for Recovery’ trip which Rosemary, Jayshree, Jenny & Val had been on were passed around and was strongly recommended for next year for those who have not been on it.
PartyFun: We had the usual party Quiz’s, one from Val and another from June, pass the parcel and a Secret Santa. Food was paid for from our funds and Val let us off the usual subs for drinks.
Theatre Trip: Key Theatre Studio-Eastern Angles production ‘Holy Mackerell Peterborough’ Christmas Show. The matinee performance is at 2.30pm on 28th January 2016, tickets cost £12.00. Please contact Denise 01733 341491 or Gill 01733 755629 by 15th January to book a place.
Remember there is NO meeting in January - See you all in February 2016.
Donations: We were all saddened to hear the news that Gordon, Olives husband, had passed away. As a token of our regards she was given a special bouquet. Her daughter Sarah had come to make a donation of some of the money collected at Gordon’s funeral of £228 which will go into PBCSG funds.
Workplace Programme: Gina introduced her friend Ros who used to work for the Papworth Trust on the Workplace Programme and was an experienced advisor. Ros said the programme had been set-up to provide support to people to get back into work and she had put together a handout specific to Breast Cancer treatment with useful helpline number and websites.
Well-Being Cancer Centre: Gina provided feedback to the group about the Stakeholder Meeting held in the Cresset at Bretton which had focused on the proposal to set up a Well-Being Cancer Centre in the Robert Horrell building. The Steering Group for the Well-Being Centre had met today and things were progressing rapidly.
She also hoped that members might be interested in coming along to the Cancer Service User Group who represent the views of service users and are hoping to have more of a presence in Oncology. The next meeting is from 4.00pm – 6.00pm on 25th November at Robert Horrell Centre.
Christmas Party: It was agreed this would take place at the Holiday Inn and Denise distributed the buffet menu provided by the hotel. Val will provide a quiz to go with the quiz June has devised, Denise will organise the ‘pass the parcel’ parcel and Gill will bring the CD player. We will all bring a secret Santa Gift to the value of £5.00.
Show Night: June suggested a return trip to the Key Studio to see the Eastern Angles production ‘Holy Mackerell Peterborough’ Christmas Show. It was proposed that the matinee performance at 2.30pm on 28th January 2016 was the preferred option, tickets cost £12.00. Members who want to come can pay at the Christmas Party or can phone Denise 01733 341491 or Gill 01733 755629 to book a place
Welcome to two new members 'Lorraine' and 'Nobi'.
Donations: Denise shared a Thank You letter she’d received from Claire & Vanessa, Breast Care Nurse Specialists for the donation of £3,000. £1,000 will be put toward Electronic Tablets & other specialised equipment which will benefit patients being treated at PCH’s Breast Unit. The £2,000 donation, by Buckles Solicitors in Peterborough, will be put towards psychological support & assessments for patients who are BRCA gene carriers, before they undergo risk reducing surgery. Some of our members posed along with Nurses & Stephen Duffy for a picture handing over the cheque, this should appear in the next edition of PCH’s in-house Pulse Magazine!
FlyFishing: We shared the excitement of four of our members, Rosemary, Jayshree, Jenny & Val, who had recently returned from their Fly Fishing weekend in Scotland, ‘Casting for Recovery’. It sounded wonderfully peaceful, restful & ideal for helping with anxiety and recovery.
Speaker: Denise shared an apology from Caroline Lansell, who was unable to attend for personal reasons and welcomed Kristin, Occupational Therapist & Guest Speaker, who stepped in to cover Caroline at short notice. The topic was Anxiety & Depression, following diagnosis & treatment of Breast Cancer.
IMPORTANT: There is a Stakeholders meeting at The Cresset on Tuesday 20th October, 9.30am-3.30pm. All food and drinks will be provided for free. Parking is also free.
Please will as many people as possible be they cancer patients, carers, relatives or staff CONTRIBUTE to the ONLY opportunity you will get to have your say or express the kind of Cancer Centre YOU want for Peterborough.
Beales: Let's start with the cheque presentation to the Group by Beales. £800.00 had been raised on our behalf.
Donation from Buckles Solicitors: Stephen Duffy passed on to a donation of £2000. Denise has organised a cheque presentation to the City Hospital Breast Cancer Unit on Monday 7th at 2.00pm. Gina, Rosemary, June, Denise and Val to attend.
Sky Diving Fundraiser: It was great to see Jane again who told us about her tandem sky dive for Thorpe Hall Hospice, which she did with her daughter Lucy. It had been the experience of a lifetime and something Jane always wanted to do, her efforts had raised £2400.00 for Sue Ryder.
Peterborough Hospital Cancer Service User Group: Gina chairs the Group asked if any members were interested in joining. The Group aims to address any issues within Cancer Services and meets every 3 months at the Robert Horrell Macmillan Cancer Centre.
‘Hands On’Event: Jane wanted to promote a reflexology session for women with secondary Cancer at Tinwell Village Hall on 10th September. She also recommended a DVD by Breast Cancer Care, for women whose Breast Cancer has re-occurred.
Race for Life: Rosemary reported that she had taken part in the Peterborough event on 7th June in the evening. The event had been well organised and she had completed the course in 1 hour.
Buckles Solicitors: This month the group were treated to a highly informative and amusing talk by Stephen Duffy on Wills, Care Home Fees, Powers of Attorney and Inheritance Tax. He is happy to email leaflets on Guide List at the end of the Newsletter to any member who contacts him, details at bottom of Guide List.
Beales Fashion Show: Denise had heard from Marjorie that they had raised £800 for us at the event and had made sales of £2,000. She thanked everyone who took part Val said she had received a phone call from Anne Marie wanting to make a presentation, date as yet unknown, so please let her know who would like to come if the date is suitable.
Lymphodema Support Group: Gaynor had been for a review and reported that this group had been set up in the Robert Horrell Centre and their next meeting was on Tuesday 1st September at 6.30pm.
Other Business: Val felt that we should provide bra’s or wigs for women on low or little income.
Gill said that it was troubling that the counselling session were not being provided by the trust and thought that as a group we should highlight this concern and support the service being set up by the Trust.
It was a full and busy meeting in July with much to discuss starting with thanks from Jane Bradley for the donations towards her sky dive in aid of Thorpe Hall.
Strawberry Tea: We presented Val with a rather fine Dahlia plant for her lovely garden, as a thank you for all her hard work on the annual Strawberry Tea event of which £423.00 had been raised.
We welcomed Joy Keys from Malaysia to the meeting (She first contacted us through Susan on our facebook page) who is a great traveller and lives in Malaysia. It was on a visit to New Zealand earlier this year that Joy first discovered her breast lump. Joy is now a member of ‘Breast Cancer Survivors and Warriors’ and remains on Letrozole. She recommended Reiki and Reflexology after Chemotherapy. Joy shared her story with us...Joy is now a member of 'Breast Cancer Survivors and Warriors'.
Beales Fashion Show: the VIP event was held on 14th July- Jenny, Val, Jayshee, Mandy and Margaret volunteered to model the clothes. The event was more successful than we could imagine and here are the photo’s to prove it!....
Well Being Day: Rachel attended this event held at Peterborough City Hospital. Everyone there were at different stages of treatment or recovery.
Jane Bradley talked about her proposed tandem sky dive for Thorpe Hall hospice, which she is doing with her daughter Lucy on the 22nd July. Anyone wanting to help Jane and Lucy to reach their target fundraising can do so by Texting JALU88 to 70070 followed by an amount between £1 and £10 or on www.justgiving.com/JaneandLucyBradley.
Annual Strawberry Tea Fundraiser: This event is being held in Val’s Garden on Saturday 27th June from 3.30pm to 5.30pm, tickets are £5.00 and can be reserved through Val Tel. 01733 267005.
Beales Fashion Show: Denise, Val and Gill met with Beales staff to discuss their proposed Cat-Walk show. The VIP event will be held on Tuesday 14th July from 6–8pm and our role will be to provide some models, highlight the event through our local networks, friends and family (including to any VIP’s we may know) and provide cakes and buns. We need members to help sell tickets at £3 each & publicise the event wherever they can by putting up posters.
Well Being Survey: Gill talked about a survey she had carried out last year in the Oncology Department and which she had first piloted with PBCSG.
Headstrong: Margaret and Jaysee had been invited to afternoon tea at the Wellesley hotel and had an enjoyable time. Vanessa Phelps was also there and had donated the £150.00 she had won to Breast Cancer.
Just a small group of us met at our usual venue in the Holiday Inn.
Strawberry Tea Fundraiser by Val is Saturday 27th June from 3.30pm to 5.30pm tickets are £5.00 and can be reserved through Val Tel. 01733 267005. There's a plea for prizes for the tombola and a request to Morrisson's for the strawberries and cream.
The Robert Horrell, Macmillan Centre Well-Being Day was highlighted by Claire who distributed flyers about the day, it was noted that this was by referral only from consultant, specialist nurses or GP.
Parachute Jump. Jane Bradley is raising money for Thorpe Hall and will be ‘Jumping’ with her daughter from Stibbington in July, she has also been invited to a PBCSG meeting to tell us all about it.
NCVO (National Council for Voluntary Organisations) have their annual conference at the Kingsgate Centre on 9th June. This is an opportunity to promote PBCSG work. The event runs from 9.30–4.00pm.
Beales Fashion Show: Manager Barbara has contacted us in the hope that PBCSG will be involved in their proposed Cat-Walk show.
Fundraising. We discussed what we could use our fundraising efforts for this year. Equipment that has been purchased previously from charitable funds is a tattoo machine and headlight for surgeons to use in theatres. The NHS does not fund all equipment needed!